The medical community tries its best to explain disease symptoms like fibromyalgia. Unfortunately, the medical community’s explanations do not jive with the experience of someone who has lived with the disease for most of their life.
Bee’s eclectic life is a blog by a 50’s something mother of 2 adult children who has dealt with fibromyalgia most of her life. She provides a chronology of the major events in her life and the part that fibromyalgia has played in them.
Her blog, I hate that fibromyalgia drug commercial, points out the irony of a current television commercial which purports a treatment for fibromyalgia that is mistaken by many people as a cure for the disease. What she says is frustrating is to be told for over 40 years that fibromyalgia was in her head, then to have a drug advertised to treat the symptoms.
Now, with a healthy scepticism, she takes the time to research and consider things before becoming excited. For her there are no cures—yet.
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I can totally relate to this , I’ve had FMS all my life, complained of pain all my life, because all the blood tests come back clean, any test that has been done .. my body is the picture of perfect health, yet, I hurt all the time, sometime to the point that I CAN’T walk , I cant work , I have no means of income as I sit here today. Dont know how my rent is getting paid , or even what I’m going to eat for dinner.
I have a very hard time holding down a job. This is the spiral of my life, I feel good, I can work, life is good…for about 3 months out of the year…and not all at once. Most of the time I’m unemployed, going from one temp agency to the next, and because I’m now concidered un-reliable, because I get sick and miss time, I dont know where to go for help, and suicide is a daily thought.
I know that Im not well educated, makes it difficult to find employment. I’m almost 40 years old and dont know what is going to happen to me in the future, knowing there are times when I’m not able to care of myself, and only have myself to rely on. People look at me with a puzzled looks when I say that I have a disability, of course not recognized as a disability because I ‘look’ ok. Unfortnatly [I] do not have the support of a family doctor, therefor no disability benifits. So now I get stressed because I’ve no money coming in, and don’t know what im going to do from here. The spiral of Fibro.
I know that in a few months I’ll be ok to go back to work for a few months, barely making ends meet during employment. The stress that it causes in my life when I have a ‘flare up’ is so much sometimes, The ‘cure’ that is being advertized. I laughed the first time I heard it, the side effects are the SAME as the symptoms…..