Heanne Hambleton lives in England and has found what so many other Fibromyalgia patients have experienced world wide–that it is difficult for friends, family, and neighbors to understand and appreciate the pain and suffering. It is sometimes difficult to comprehend how someone can look so normal, but be in constant pain.
In a recent post, Hambleton shares the story of a friend who invited 62 neighbors in her little village of Bedfordshire, UK, for a morning coffee. The purpose was two-fold. First, to share with them what Fibromyalgia is and how it has effected her life and that of her family. Second, to help raise funds for Fibromyalgia research. The morning coffee gathering occurred during England’s national Fibromyalgia week.
Hambleton describes the onset of Fibromyalgia pain as fibro-flair, which can be brought on by stress, a family upset, change in weather, or a lot of other things. She describes those who suffer from Fibromyalgia as Fibromites and feels that Governments should recognize Fibromyalgia as a disease and fund research into a condition with no known cure.
With an eye on World Fibromyalgia Day (May 12, 2008), Hambleton suggest that people start writing letters to their government leaders now and raise awareness of that special day.
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Hi Thanks for the support and if any of your members are writing to government leaders on May 12 2008, let me know and I will do my best to spread the word.
Yes Joan Chappell the fibromite who invited 62 people to enjoy her bedside manner during her fund raising awareness coffee morning, raised over £500 for the cause and got exposure on local radio to help raise FM awareness.
Sorry no website yet (soon under construction) but they cannot stop me from writing and I am very busy blogging or weblogging.
Take care, keep well and think positive. A real belly laugh is as good as an aerobic work-out. Find something to laugh at and enjoy. Jeanne
I work for Dr. Ian Hyams at his pain clinic in Maple Ridge, BC Canada and he also does work in the UK. I am also a fibromyalgia patient. If I can do anything here in Canada, please let me know. ‘
-Heather
PS. Can’t believe I touched on this site a mere 8 days too late for this fibro awareness campaign! Wish I had caught on sooner.
I believe or I know but doctors believe but yet r/o when comes to disability claims the possibilty and diagnoses for fibro. As I am only 27 years old you can imagine the depression I have suffered just for not knowing what was causing so many different problems. I have been likely to have fibro on several occassions and currently prescribed Lyrica but I do not take the medication well I do not consume much of the 20+ perscriptions given to me. I also have TMJ (diagnosed 1 week after falling from a balance beam in the military). I am a veteran from the Army, currently with limited medical insurance. I love just going with the flow to relax and it seems looser on the strain of my shoulders. It’ s amazing how the internet knew more about my symptoms than the VA Hospitals and some outside physicians..known from experience.
Not sure what’s next or which way to go…Not sure how I made it to this page and actually responded. But it hurts inside and out.
LaShondra Bishop
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